I was given the unique opportunity a few weeks ago (July 4th, actually) to share Wolf's story in front of our church, Hope Community Church of Anaheim. I talked about God's faithfulness to our family in the midst of the uncertainty surrounding our son's birth. I have not watched this video, mainly because I'm too embarrassed to watch myself on tape, but I invite you to watch it and let us know what you think:
9:30 AM: After the opening remarks, we met Julie and her daughter Shayla. Julie is an OI support group leader from Portland. We got connected with her through the Oregon Ducks fanblog I frequent, Addicted to Quack (ATQ), when several members of the blog worked together to put on a fundraiser to send more people from the Portland area to the conference. Julie helped us organize the scholarships and get them out to people who needed them. I’d like to take this opportunity to once again thank everyone over at ATQ who was involved in the fundraiser. They came through in amazing ways. I’m happy to say that I got to meet several people who received the scholarships, and I am very glad I could be a part of the whole thing. It was awesome to be able to meet Julie and her daughter in person and get to know them a bit better.
Once again, here we are, and I feel I must open with another apology for the lack of posts I’ve been putting up. I assure you, it’s not because I’m trying to shelter you from bad news, or anything like that. The truth is (aside from being busy), there just hasn’t been much to tell. Which is a very good thing!
I know, I should be updating you with good news as well, so yeah…sorry. Wolf has been doing well, still growing, still not breaking any bones. We haven’t been going to many doctor appointments lately because there just hasn’t been a reason. And we thank God every day for that.
But we did get back on Monday from a four-day trip to Portland, Oregon, where we attended our first OI Foundation National Conference. You can check out the OI Foundation through the link on the right of the page if you’d like. The OIF puts on this conference every other year. It is a gathering for people with OI and their supporters. There are fun social events and great speakers who address important aspects of living with OI.
We have more good news to report about our little Wolf! We went to see an OI expert at Shriner’s Hospital last Friday (she happens to be the same doctor who sees Atticus Shaffer, the youngest kid on the TV show “The Middle”). The news she had for us confirmed what we had been hearing from our Kaiser doctors.
According to the doctor, despite the different types of OI out there, they tend to categorize actual symptoms into three main categories: mild, moderate, and severe. After examining Wyatt and looking at x-rays, she called his symptoms mild, with the main risk at this point being additional fractures in his femurs because of the bowing. She definitely advised us NOT to pursue treatment at this stage since it doesn’t seem necessary yet. She expects him to walk without too much trouble, although it may be delayed somewhat. She said that we were doing a fine job with him and encouraged us to keep doing what we’re doing.
It’s been awhile. Sorry for the gap between posts – I know many of you who read this blog are praying diligently for Wolf and the rest of our family, and we really want to keep you abreast of the situation as much as possible. Sometimes, though, life gets busy. And when you have three children younger than 5, “sometimes” = “almost all the time.” There’s my excuse, take it or leave it.
But since we’re here, let’s have some news on our young Master Wyatt, shall we? I am pleased to report that the news is good! We have visited with geneticists three times since the last post, and the meetings have gone well. I’ll break down each of the three meetings: